Well, okay, I'll take advantage of this July 4th challenge to promote the book I wrote :)
The Jeffrey Journey is based on notes I scribbled during the brief time we had with our third baby, diagnosed at 8 weeks with spinal muscular atrophy. SMA is a wicked progressive neuromuscular/motor neuron disease, and Jeffrey had a severe case of the deadliest form. He earned his wings at 5-1/2 months.
One of my favorite parts of the book is the special dedication, with one section honoring those living with SMA (they are amazing!!!) and another serving as a memorial.
The book originally came with a CD of lullabies my mother wrote for Jeffrey; it's no longer sold with the book, but is available :)