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How do we get the word out? I want YOUR ideas.

Started by Kristine , author of Cora's Story 4/7/2010 7:57:35 PM
Cora's non profit is officially recognized by the state! Woo hoo! Now we can let the real work begin.

I've talked about it with some of you, but I really hope to reach out to pregnant women and moms to let them know about congenital heart defects, the most common birth defect.

I don't want to run a scare campaign, but all moms have a right to know about the risks and  to know about screening available.

So CHD moms, pregnant women, and all moms, jump in! Let's form this non profit together.

What are your ideas for reaching out to pregnant women and moms to spread awareness?

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Have pamplets available to parents prior to going in to see OB. Contact OB offices to see if there willing to have these pamplets in their office. Have an event like a "fun informational day" for expectant moms & dads , & ones who are trying to concieve. Which would also mean pamplets in fertility clinics as well. My thought which I have in the works right now is trying to hit shelters with moms who are expecting & dads. Trying to gather things to give like a little gift bag with items that will of course have CHD facts on them. I hope not to long Kristine


Reply by Kristine

author of Cora's Story 4/7/2010 9:02:37 PM
Great ideas Alicia. I've heard of some grumblings about OB offices unwilling to put up flyers and brochures because they don't want to scare the moms. I'm wondering if we could write them in a non scary way.



Krisitne,

I think that is such a poor response that they do not want to "scare" moms.  I find that offensive as both a woman AND a mother.  How about empowering moms to protect, prevent and be proactive?  Every mom I know woud want this information. 

Non-invasive testing for CHD should be as routine as testing for PKU.  How many moms have been traumatized/scared about PKU testing?  None that I know of.  It is just a "standard" thing.

I think one community that would be receptive to "getting the word out" is the Early Head Start community, Birth to Three, Zero to three, Early On, etc.

My youngest son's CHD was discovered by a "Resident Physician" a few hours after birth...not by the attending physician.

I'll be helping to spread the word about your good works on behalf of your beautiful Cora. Whatever I can do to help, count me in!

 

 

 


Reply by Kristine

author of Cora's Story 4/8/2010 4:39:24 PM
Thanks Wendy! You're already helping!

Testing should be routine, and hopefully will be soon.

But, moms should also be aware. It makes me so sad to think I learned about CHD from the coroner and I hear of so many families that say they were blindsided.

And, knowledge is empowering. With at least a basic knowledge of CHD, getting that diagnosis might be less scary to mommas, and they would know where to turn.

i don't have any ideas, but I'm in the awesome state of Indiana too!! where exactly are you?  shoot me an email!!

 

Julia

workwifemomlife@gmail.com


Reply by Kristine

author of Cora's Story 4/13/2010 11:18:50 PM
Hey Julia! I'm near Fort Wayne now, hoping to move to Indy!! Hope to plan many Indiana events!

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Be nice and all is okay. :) Self promotion and spam are deleted. But, I really hope this becomes a place to gather to talk about congenital heart defects and ways to spread awareness.

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