Krisitne,
I think that is such a poor response that they do not want to "scare" moms. I find that offensive as both a woman AND a mother. How about empowering moms to protect, prevent and be proactive? Every mom I know woud want this information.
Non-invasive testing for CHD should be as routine as testing for PKU. How many moms have been traumatized/scared about PKU testing? None that I know of. It is just a "standard" thing.
I think one community that would be receptive to "getting the word out" is the Early Head Start community, Birth to Three, Zero to three, Early On, etc.
My youngest son's CHD was discovered by a "Resident Physician" a few hours after birth...not by the attending physician.
I'll be helping to spread the word about your good works on behalf of your beautiful Cora. Whatever I can do to help, count me in!